It’s a medical “mystery” that has left a Connecticut family baffled and heartbroken.
After a long history of medical problems, a West Hartford teenager is now “trapped” inside a hospital with seemingly no way out.
FOX CT spent the past few months investigating the emotional case.
It has been a bitter custody battle, and nine months after it started, it’s still going on.
In December 2012, Justina Pelletier was an active 15-year-old girl who would go ice skating, laughed and spent time with her family.
But just two months later, her family says their nightmare began.
“[Exhales] It’s beyond any wildest nightmare that you could think of,” says Justina’s father, Lou Pelletier.
Her longtime West Hartford psychologist has also been following the case.
“It’s the most bizarre situation … I’ve ever been involved with,” says Dean Hokanson, the clinical psychologist who has worked with Justina the past five years.
Justina was diagnosed with mitochondrial disease a few years ago. It’s a genetic disorder that can cause loss of muscle coordination and weakness.
Despite that diagnosis she lived a normal life.
But last February, she also got the flu and was admitted to Boston Children’s Hospital to see her specialist.
Almost immediately, a different team of doctors delivered a different diagnosis, questioning the original diagnosis of mitochondrial disease.
“They came in, and they said we cannot take Justina out of the hospital. They called DCF,” says Linda Pelletier, Justina’s mother.
They said Justina had “somatoform disorder.”
In short, they were saying she suffered from a mental illness, not mitochondrial disease.
Her parents, Lou and Linda Pelletier, were escorted out of the hospital by security, and within four days, they lost custody of Justina. ...
The Pelletiers are left fighting DCF in court, hoping to regain custody of their daughter, and watch her ice skate once again.
“Hospitals, be it this scenario or big picture, cannot just hide behind DCF to do their dirty work,” says Lou Pelletier.
Since our initial investigation, we’ve learned that the judge has issued a gag order in this case.
Friday, November 29, 2013
CPS blames parents for bad diagnosis
Fox News Connecticut reports on a case where CPS blamed the parents when they got bad medical diagnoses for their daughter: